Monday, June 30, 2008

I like change.

I woke up in the middle of the night and i went to the boys' room to check on them. I saw Dale's feet hanging from the bed to the floor. He's obviously too big to share a single-sized bed with Anton now.

When they woke up, both of them were sneezing and coughing. Since the room was small, the fan was too close to them, and this may cause them to catch cold during the night.

So I've decided to switch rooms with them. I now occupy the (wah!) small room, and they now can sleep more comfortably in my queen-sized bed. But of course, my clothes and other stuff are still in the big room, the only thing I can cram into this room was my laptop and a small vertical table with some of my essentials.

Oooh.... the sacrifices mothers make.

Friday, June 27, 2008

WEB Browser for PWAs

A web browser ZAC (Zone for Autistic Children) is now available. This was specially created by a grandfather of a child with autism.
The browser is meant for learning as well as entertainment . "...We have made this browser for the children - for their enjoyment, enrichment, and freedom. Children touch it, use it, play it, interact with it, and experience independence through ZAC.", a statement from the site.The browser is downloadable. Please click here to download

masaya ako.


kasi mabait ka sa kin.


masaya ako.

kasi ikaw ay ikaw.


may tayo...

kahit hindi tayo.

yey.


Create your own custom glitter graphic!

Tuesday, June 24, 2008

Children with "Dis"-abilities Workshop

*12th Flr RTRF, Allied Bank Center 6754 Ayala Ave Makati 1226*

*July 8, 2008 8:00 am*

*FACILITATOR: EVA ARNOTT (AUSTRALIA)

WORKSHOP Description:

Today, a rapidly growing number of children with "dis"-abilities have caused
a major concern not only for the family but also for the society, with
experts warning that they can become a further "burden" in the future
society. Being parents for children with ADHD, autism, dyslexia and other
"abnormalities, " a great amount of stress, effort, and financial as well as
psycho emotional support is required.

However, is it really that they are abnormal or is it that they function
outside what the society defines as "normal functional beings?" What if,
they are in fact persons with special talents and abilities, only to be
hampered and dampened, in order for us to understand and be able to function
as a "normal" person?

If you feel that you are embarrassed, harassed and/or disconnected to your
child or loved one, or you feel that they will not be able to take care of
themselves, because of their "dis"-abilities, we urge you to join us in our
1-day workshop and you might just find out that they are in fact as normal
as we are, it's just that their communication skills and behavior are a bit
out-of-the ordinary.

What if you can be able to communicate with them easily and therefore
relieve you of the stresses of everyday life with these "special" children?

Fees: P500 (includes lunch and snack)

*For further information:

*Pls call 7810677, 4139230*

*Or text 09192949679*

*Look for Melody*

"All of Life comes to us with Ease, Joy and Glory"

[Non-text portions of this message have been removed]

Friday, June 13, 2008

I am obviously not a fan of X-Factor....


...but i learned to love Shayne Ward.

Friendship with God

I am a Catholic. I hear mass every Sunday. I pray. I was raised believing in hell and in heaven. In what God supposedly said was right and wrong. The 10 Commandments. The 7 Deadly Sins. The Eight Beatitudes. Forgiving seventy times seven times.

Through it all, I can say that I had my share of everything. Committing sin, repenting, helping others, forgiving a person more than once in his lifetime.

My life is a constant struggle. A seemingly never-ending test of patience, virtue, and strength. I have been on the verge of every imaginable breakdown in the last 33 years that I have breathed.

But I did breathed.

And in everytime I failed to acknowledge the presence of God as a friend I can trust to listen to my fears, I feel ashamed. Sometimes, eventhough you have poured everything to someone, like your bestfriend or a co-worker or your mother, you still feel the need to talk to someone who'll never judge, and will give you hope without even hearing them out loud.

I believe that God lives in all of us. We just need to find where He resides.

Throught my almost 3 years of being sick, from hearing the diagnosis, going through miracle healing masses, never-ending tests, drinking herbal medicines, dialysis, plasmapheresis, and the kidney transplant, until now, I have had many conversations with God. I've tried sadness, hoping, anger, asking questions, asking for help, strength, and most importantly, giving due thanks.

Now, after everything, I do feel blessed by Him. Not only with the way things have worked out, but by making me believe in the power of friendship and prayer.

I have lost my faith in God before because of all the trials in my life. I have gone to Him angry, and if I could throw a plate at Him, I think I would have. I have been hurt in every imaginable pain going through life that I thought it was all God's doing, testing me everytime.

But now, everything is moving towards its right place--my family, my marriage, Dale, my health. I feel that all I have asked for from Him are currently being answered. The phrase "in His time" answers all my questions.

In the three years I didn't let go. I thought that when things go wrong, I could just forget He existed. I thought praying to God and asking was all there was to it. When I tried treating God as my friend, that's when everything changed. And when things didn't work out, I didn't forget Him, I ranted and raved and asked too many questions, just like what you'd do with a friend.

I am living proof of God's mercy and grace. Start a friendship with the Lord. Seek Him, talk to Him, tell Him a story, laugh with Him, ask Him questions, get mad at Him, cry to Him, and then thank Him, for hearing you out.

Someday, you'll find that God is all the friend you need.

Tuesday, June 10, 2008

My Rs

Got this from Ian.

Use the first letter of your name to answer each of the following. They have to be real places, names, and things. Nothing made up! Try to use different answers if the person who answered the survey before you had the same initial letter. You CAN'T use your name for the boy/girl name question.

1.Your name: Rachelle

2.Four words: race, rice, reason, real

3.State/country: rio

4.Boy Name: ronald

5.Girl Name: roshyl

6.Occupation: real estate broker

7.Word that describes you the best: real

8.Something you can wear: relo (hahahaha)

9.Something found in a kitchen: raisin

11.Something you shout: ronald!!!! (in an angry, non-erotic way, ok?)

12.Something you do at school: run

13.Name of a friend: red

14.Name of an animal: rhino

15.Name of a drink: rhum

16.Name of a holiday: rizal day

17.Name of a subject in school: religion

18.Name of a cousin: Ronna

19.Name of a fast food chain: red ribbon?

20.Name of a person you're crushing or had a crush on: ronald (isn't this just plain convenient? nyehehehe)

21.Name of a food you like: radish

22.Name of a food you do not like: raisins

23.Name of a kid's toy: robot

24.Name of a flowering plant: rose

25.Name of a shopping mall: robinson's

26.Name of a person you like: rosie

27.Name of a person you dislike: (don't have one I personally know that I dislike)

28.Name of a place in your school: reading room?

29.Name of an object in front of you: ring

30.Name of an electronic device: remote

31.Name of a color: red

32.Name of a tourist spot: rio

33.Name of your classmate: Romelyn

34.Brand of a car: Rolls

36.Name of a candy: reese's

37.Name of a book: Reaching out

38.Name of a cellphone brand: (wala akong alam, at wala din akong maresearch)

39.Name of a sickness: rheumatism? hehe.

40.Name of a kind of fish: rockfish

41. Make a sentence with at least 6 words starting with your first letter name only.
Reich religiously runs 'round Remington Road. (daya, di ba? hehehehe)



According to studies, your sexual identity is revealed by the first letter of your first name... what do you think? (Those of you with names that start with "N" will probably wish it started with "K"!)

-R-
You are a no-nonsense, action-oriented individual. You need someone who can keep pace with you and who is your intellectual equal the smarter the better. You are turned on more quickly by a great mind than by a great body. However, physical attractiveness is very important to you. You have to be proud of your partner. You are privately very sexy, but you do not beg, you are willing to serve as teacher. Sex is important; you can be a very demanding playmate. (naks. parang totoo ah.)

Wednesday, June 04, 2008

i'm home!

yey! i'm finally home. my doctors gave me the A-Ok two days ago. the last thing that the surgeons took out was the Jackson-Pratt drain, or JP as they call it. It looks like this:

http://www.nhspurchasing.com/AllegianceHealthcare/images/jackson.jpg

i thought that the tube inside me was like about only an inch or two, but when they pulled it out, well, i almost screamed. it was like 5 - 7 in long inside. Sorta like you're being pulled an intestine. Buti na lang, matapang pa ko. Haha.

When I got here, I wanted soooo much to embrace my kids. But I have to be very careful talaga. Everything is back to normal, sort of.

I can't go out even for church for 3 mos. The only time that I have to go out is for weekly check-ups and labtests. The mall, I can maybe go to in 6 mos (tamang-tama for Christmas!). Everything depends on how well I am recovering, and that will be determined with the labtests. I have to wear a mask for a year. Especially when I go out. Of course, I take it out when I'm taking a bath or eating. Haha. But yeah, even in my sleep I wear one. That's to ward off any infections.

I have 10 kinds of pills, and I take about 22 pills in a day. I have to eat a lot of protein now, coz I'm on steroids and it breaks down the protein in your body. When the steroids are lesser, then I have to lay off the meat na rin.

I now weigh around 109 pounds. For those that know, I normally weigh around 125-130. But ideally for my height, I have to be 115. Wish ko lang di magbloat yung face ko, or magmukha na naman akong monster because of the steroids. Ok lang sa kin tumaba, pero yung tabang normal. Ngayon, I look really sick coz I dont have an ounce of muscle on me. Laylay lahat. My ribs are showing. Yuck.

Next step daw when I'm all better is my arm. I have a fistula on my right arm, and because of this, the vein keeps on getting bigger. In time, it will hurt. And if I ever get a cut there, they said I'll die in 2 minutes because of blood loss. So, ayun. Maybe next year na lang. or after 6 months. Hay! It's another operation noh! Kahit na minor yun, it can also be stressful.

I can tolerate the pain, kasi nga matiisin ako. Alam niyo naman yun. Haha. But yesterday was a different story. Haha. I finally took my first painkiller. Pano, pinagpapawisan ako sa sakit.

Now, I can go up the stairs. I can sit for a little longer than 30 minutes. But I still rest talaga. Just lie down in my bed, read a book, listen to my mp3, or pray the rosary.

My kids are keeping me crazy daily. I have to just close my eyes to control my temper. My Mom checks on the kids from time to time lalo na pag nagaaway na sila. Dale cannot seem to get into his head that he cannot lie on top of me, or cuddle with me just yet. But Tony is ever so careful. He sat beside me last night and asked if he could embrace me a little, so I gave in, pero sa left side.

Last night, I suddenly thought of their old school notebooks. I asked Manang to take them out. Naisip ko kasi sayang yung mga unused pages, so I took them out. Siguro nakuha ko, worth mga 5 notebooks pa. I plan to make something out of it, like nice new notebooks din to write down important things. Lalagyan ko na lang designs.

Now, I'm downloading audio rosary prayers, lalagay ko sa mp3 ko para when I pray, may sinasabayan na lang ako, instead of reading the mysteries from my little kodigo. Di ko po kasi saulo yung mysteries. Haha. Ilang taon na kong nagdadasal ng rosary, di ko talaga siya masaulo.

Nway, that's it for now. Thanks again for those who prayed and sent their well-wishes. I'm still praying for my recovery and good health beyond my transplant. I'm also praying for all of you guys, and my donor, Geronimo Caña, Jr. Without him, I won't be here. Please include him in your prayers, too. Thanks!

Sunday, June 01, 2008

Day 5

wala akong Days 1-4! haha.

Nway, the kidney transplant went well. Everything was tolerable naman. I have been in the hospital for 3 weeks now. Bummer. My kids have not seen me in that long time. Dale is already furious. Saying things like I am a liar, and I always extend my stay.

The first almost 2 weeks were for the plasmapheresis treatments. It was so tiring and literally draining. But I can now say that it was really worth it.

I was operated on May 27th, a tuesday. I consider that date as my 2nd birthday now. It's cute coz my original birthday is March 27.

That day, the pre-op procedures were also kainis. A lot of injections, skin tests, even beeing given a fleet enema. whoa!

When I was already in the OR, I even saw my donor being started on. Then a nurse or a doctor injected something that made me sleep. I woke up in the recovery room, shiverring cold, naked, covered with a blanket, with a cathether, an IV, and an epidural catheter on my back. yes. a plastic needle inserted in my back. I started feeling drowsy, and I think I just blurted out, "malamig!" and "nasusuka po ako.." before everything went awful. I started vomitting. Luckily, everyone there were extremely kind. They started taking blood, from my foot! That time, it wasn't that hurtful coz I still am on anesthesia. But they couldn't find a bigger vein, so they took it directly from my artery (pulse). and it hurt like h*ll!

I was transferred to the ICU. It was a little cool coz they have this computer where the bp-taking machine is attached. It takes my BP automatically, oh, i think about every 30 mins. ICU personnel, my personal nurse were very kind as well. They covered me with a blanket-like thingie, which is made of a shiny aluminum like material that they attach to a machine which gives heat. So, i stopped shivering. But everyone started coming in and checked on me coz my BP dropped to 80/60. And when that happens, blood does not flow to the new kidney. I was given more medicines, and transfused 2 bags of washed-up blood.

3 AM the next day, I was given a cleaning, which was very soothing talaga. Nawala ang lagkit. I was transferred to my room in the afternoon. That room pala had a busted aircon so I was transferred to another room.

Days 1 - 2 of recovery were very hard for me. I couldn't sleep because vital signs were taken every hour. The catheter was drained as well. If you have been operated on and had been inserted a catheter, you'll know what I mean. I was also being tested every day, blood is being taken from my foot. Very uncomfortable. I was given IV injections, and oral, too. The good news was my creatinine levels were already normal, Day 1. Other patients even leave the hospital with still elevated creatinine.

I started feeling very good on the 3rd day. I slept great. I got used to the catheter. But the epidural catheter on my back was starting to get on my nerves.

Last night it was taken out by the anes. I was laughing coz he was removing the tape on my back and I was ticklish. Before he removed it, he gave me my last epidural shot. It felt cold on my back, but he was right. It didn't hurt. Even when he removed the plastic needle. Now I can sit without worrying if I will damage my spine or something, coz I can feel it sticking in my back.

So now, my IV is removed, too. But I still have the needle on me, in case I am in pain, they could still inject pain killers. But honestly, I think I have high pain tolerance coz I don't really went into so much pain. The air inside is more uncomfortable and it hurts, too. I had to place a hot water bottle on my tummy everytime for the first 3 days.

Later, the catheter (sonda, as they call it) will be removed as well. Hallelujah! I can now walk to the CR, and not do my stuff on the commode near my bed. But of course, I know removing it will be painful. I have been on catheters whenever I give birth.

I still have fluid coming out of my wound. Oh, I forgot to mention I have a drain sticking out of my side near my wound. it's a small plastic round thingie that's shaped like a granade with a tube. they drain the water coming out of there from time to time. And since I still have fluid coming out, I still cannot go home yet, according to the surgeon. But if I want daw, I can leave it there for the meantime, and when there's no more fluid, I can go back and have it removed. Ew.

Anyway, my wound is about, i think, 4 inches long. sideways. a little low.

So there. That, i think, was almost everything.

Thanks to everyone who wished and prayed for the success of my transplant. Kudos to the whole medical team (grabe, dami nila talaga. surgeons palang, 3 na.) And I have the best team. Very professional and caring for their patient.

Super thanks to my family. Kung wala sila, wala ako. My parents, my brothers and sisters-in-law, nieces and nephews, kids, and Ronald. Also Manang who took care of me here and my kids at home.

My relatives... who chipped in, who sent us financial help and loaned us money... thanks sobra.

Ang Peel Here at Mahiwagang Daliri team who were so concerned. When I finally got to read my text messages, I felt that I was so loved pa din pala.

and Thank God for giving me a second lease in life.

Hay. tataba na ko ulit! I'm on steroids! Wah! I need to exercise! Hehe. So shallow ng concern.

Again, thanks!!! God bless.